Sarah, a Physician’s Story of Narcolepsy
“I wanted to bring this to their attention to protect other students with chronic health conditions from harmful attitudes. Instead, they made me feel like I was being oversensitive and dramatic.” – Sarah
“I wanted to bring this to their attention to protect other students with chronic health conditions from harmful attitudes. Instead, they made me feel like I was being oversensitive and dramatic.” – Sarah
“Like all good men in their 40s and 50s, [the attitude is], ‘well that’s nice to know… but it’s not causing me too many problems. I’ll buy it, but I won’t use it’.” – Reg
“La réduction de l’isolement commence en nommant le syndrome. L’un des objectifs de notre groupe est de dire : ‘vous n’êtes pas seul’” – Guillaume
Reducing isolation starts with naming the condition. One of the goals of our group is to say: ‘you are not alone’ – Guillaume
“Le manque de sommeil affecte significativement ma vitalité, ma concentration et ma mémoire.” – Marie, une femme de 54 ans en postménopause
“The lack of sleep significantly affects my vitality, my concentration and my memory.” – Marie, A 54-year-old woman in postmenopause
“I would wake up hot, hot, hot! I would take the sheets off and then fall back to sleep and then wake up three seconds later and put the sheets back on.” -Mary
« Je me réveillais et j’avais chaud, chaud, chaud! Je tassais les couvertures et je me rendormais, puis je me réveillais à nouveau trois secondes plus tard et je remettais les couvertures. » – Mary
« Quand j’étais à l’école, j’avais jusqu’à dix attaques de sommeil par jour. J’avais des épisodes de somnolence très soudaine, de brouillard cérébral et d’épuisement très soudains, impossibles à combattre. » -Sofia
“When I was in school, I would get up to ten sleep attacks per day. I would get episodes of very sudden sleepiness, very sudden brain fog and fatigue, which is impossible to fight. [It is] a state of half-awake and half-asleep. I don’t know what’s going on. I’m not alert, but I’m not asleep either.” – Sofia